The Developmental Disabilities Planning Institute (DDPI) is directed by Sharon Cook. Her team includes three full-time staff, three part-time staff, and three student survey administrators. Ms. Cook is responsible for supervising all aspects of the DDPI. The three project coordinators are responsible for training and supervising part-time interviewers, managing the DDPI Help Line, reviewing incoming survey requests, preparing reports and correspondence, administering assessments, overseeing data entry, monitoring the data collection process for project research evaluation, assisting in the creation and maintenance of DDPI’s data and information management systems, verifying, processing and analyzing survey data, and acting as liaison to respondents and all other project clients and activities
The Developmental Disabilities Planning Institute of the BCSR conducts on-line assessments for the New Jersey Division of Developmental Disabilities (DDD). This data collection project assesses the functional abilities, medical status, and service needs among New Jersey residents who are applying for services from the DDD. The DDPI unit programmed the New Jersey Comprehensive Assessment Tool (NJ CAT) survey into Qualtrics, beta tested its functionality on-line, tracks all assessments and conducts follow ups on those not completed on a timely basis; staffs a help line for family and agency respondents; creates datasets, manages the data; and conducts analyses regarding competency assessments, levels of need, and challenging behaviors with attention to living arrangements and regional differences. In total, there are approximately 30,000 adults in New Jersey receiving DDD services. The DDPI has completed over 16,000 NJ CAT assessments and fielded over 5,000 messages through the Help Desk.
DDPI has provided technical support and evaluation studies for the DDD since 1994, when the Institute was established as an independent, university-based organization. Early Institute work focused on following individuals who had moved into community residences from state developmental centers. These studies were designed and reported after exhaustive review of practices in other states, validity and reliability testing, and other specialized analyses. Much of the DDPI’s recent work has focused on assisting the DDD with its implementation of the 2007 Olmstead Plan: “Path to Progress” in response to the 1999 Supreme Court decision in Olmstead v. L.C., 527 U.S. 581(1999), which held that states cannot segregate people with disabilities in institutions against their wishes when community-based services are available. Currently, the Institute is supporting DDD as it moves to a Fee-for-Service model of service delivery.